My First Book

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My First Book

1Sam_8.Mar-49
Jul. 2, 2022, 5:55 pm

This book started out as a daily diary of how my wife´s behavior was dramatically changing due to Alzheimer´s and how I was affected and began to relate to her differently. Writing helped me ventilate my deepest emotions and reactions in private as they were too personal to express to others. Somehow writing "alleviated" my continuous sorrow. Soon this diary turned into this book. As an author this is my first attempt to write. I am not an expert or an authority on Alzheimer's. I never pretended to be. I am simply an ordinary “John Doe” caregiver, husband sharing my experiences living and caring for my wife with Alzheimer's. We have been married 43 years and I am trying to not let go and avoid her shutdown.

2Sam_8.Mar-49
Jan. 2, 5:58 pm

My Second Book

I realize there are other "amateur home caregivers" like me on their own trying to take care of a loved one with Alzheimer's Disease.

Like everyone I had to learn the hard way by trial and error 24/7 for 6 years to mitigate tremendous changes in behavior with my wife. It's not easy as she was in the beginning of the advanced stages unable to speak.

My second book “62 Tips For Caregivers of Alzheimer´s To Delay Shutdown” defines what it means to be a home caregiver of a loved one with Alzheimer's on the loneliest possible life journey.

It details how caregivers are up against a huge wall of emotions that work aggressively against their efforts when trying to care give for a family member with Alzheimer's.

Caregiving for a loved one with Alzheimer's without any outside help is extremely difficult but in most cases there is no other option. Outside professional help cannot respond “in real time” when radical behavioral changes occur. Only home caregivers can. There are no two profile behavioral changes alike, not even in the same stage of the disease.

There isn't a standard therapy to apply. There are no fixed "do this'' and "do that" rules, or a “to do list” for the caregiver to follow. Even the stages of Alzheimer's vary in their characteristics. Hospice Care begins at home the very first day it is diagnosed.

This book can possibly be a shortcut for caregivers as it details experiences from successes and failures from a home caregiver as a guide to deal with these behavioral changes. “What worked for me may not work for you.” Caregivers are completely on their own.

Detailed are my own invented personalized therapies and activities that can empower a caregiver with new tools and strategies from an experienced home caregiver to mitigate “in real time” changes of behavior of their loved one.

Readers who identify as home caregivers who will sacrifice whatever it takes, suspend any activity we enjoy, ignore our basic necessities, and neglect our health to prevent our loved ones from shutting down.

Hopefully this book will provide that much needed guidance, support and instill confidence and hope to those navigating the loneliest journey of their lives.