62 Tips For Caregivers Of Alzheimer´s To Delay ShutdownRezensionen

“62 Tips For Caregivers of Alzheimer´s To Delay Shutdown” defines what it means to be a home caregiver of a loved one with Alzheimer's on the loneliest possible life journey.

This book details how caregivers are up against a huge wall of emotions that work aggressively against their efforts when trying to care give for a family member with Alzheimer's.

Readers of 62 Tips For Caregivers will discover from this caregiver how to overcome this silent battle of their unexpressed deepest feelings even to their family and closest friends so as not to intrude and burden them with added emotional weight. These emotions are kept in a human "vault" which makes caregiving extremely sensitive, lonely and collapsible. Sadness is deep, daily and usually “hidden”.

Caregiving for a loved one with Alzheimer's without any outside help is extremely difficult but in most cases there is no other option. Outside professional help cannot respond “in real time” when radical behavioral changes occur. Only home caregivers can. There are no two profile behavioral changes alike, not even in the same stage of the disease.

There isn't a standard therapy to apply. There are no fixed "do this'' and "do that" rules, or a “to do list” for the caregiver to follow. Even the stages of Alzheimer's vary in their characteristics. Hospice Care begins at home the very first day it is diagnosed.

This book promises to be a shortcut for caregivers as it details experiences from successes and failures from a home caregiver as a guide to deal with these behavioral changes. “What worked for me may not work for you.” Caregivers are completely on their own.

Discover in 62 Tips For Caregivers Of Alzheimer´s To Delay Shutdown, my own invented personalized therapies that will empower a caregiver with new tools and strategies from an experienced home caregiver to mitigate “in real time”changes of behavior of their loved one.

Readers will learn as there are no two Alzheimer's victims alike, there are no two caregivers alike. We are all different in the way we react. This book details personalized activities and therapies that can vary because we are all dealing with very different behavioral changes.

62 Tips For Caregivers of Alzheimer´s provides tools to manage our vulnerability to frustrations that test our temperament and desperation that often sets in. We easily forget that what is logical to us is not logical to the person we are caring for.
Readers will identify as home caregivers who will sacrifice whatever it takes, suspend any activity we enjoy, ignore our basic necessities, and neglect our health to prevent our loved ones from shutting down.

“62 Tips for Caregivers Of Alzheimer´s To Delay Shutdown will provide that much needed guidance, support and instill confidence and hope to those navigating the loneliest journey of their lives.

I realize there are other "amateur home caregivers" like me on their own trying to take care of a loved one with Alzheimer's Disease. Like everyone I had to learn the hard way by trial and error for 6 years to mitigate tremendous changes in behavior with my wife. It's not easy as she was in the beginning of the advanced stages unable to speak.

Uncover the secrets in 62 Tips For Caregivers Of Alzheimer´s To Delay Shutdown to effectively manage the behavioral changes of a loved one with Alzheimer's and take control of your home caregiving journey.

Discover the power of compassion and knowledge in this insightful guide for caregivers of loved ones with Alzheimer's. With 62 invaluable tips at your fingertips, you'll gain the tools and understanding to navigate the unique challenges of this journey and make a profound difference in your loved one's life. Delve into powerful strategies that will help delay the shutdown and preserve precious moments of connection. This book is your companion - illuminating, empowering, and reminding you that every caregiver has the capacity to bring light and love to those they hold dear.

“62 Tips For Caregivers of Alzheimer´s To Delay Shutdown” defines what it means to be a home caregiver of a loved one with Alzheimer's on the loneliest possible life journey.

Caregiving for a loved one with Alzheimer's without any outside help is extremely difficult but in most cases there is no other option. Outside professional help cannot respond “in real time” when radical behavioral changes occur. Only home caregivers can. There are no two profile behavioral changes alike, not even in the same stage of the disease.

Consequently, there isn't a standard therapy to apply. There are no fixed "do this'' and "do that" rules, or a “to do list” for the caregiver to follow. Even the stages of Alzheimer's vary in their characteristics. Hospice Care begins at home the very first day it is diagnosed.

This book promises to be a shortcut for caregivers as it details experiences from successes and failures from a home caregiver as a guide to deal with these behavioral changes. “What worked for me may not work for you.” Caregivers are completely on their own.

Witness invented personalized therapies that will empower a caregiver with new tools and strategies from an experienced home caregiver to mitigate “in real time”changes of behavior of their loved one. Detailed are personalized activities and therapies that can vary because we are all dealing with very different behavioral changes.

62 Tips For Caregivers of Alzheimer´s provides tools to manage our vulnerability to frustrations that test our temperament and desperation that often sets in. These emotions work aggressively against our efforts when trying to care give for a family member with Alzheimer's.

Readers who identify as home caregivers, will sacrifice whatever it takes, suspend any activity we enjoy, ignore our basic necessities, and neglect our health to prevent our loved ones from shutting down.
“I realize there are other "amateur home caregivers" on their own trying to take care of a loved one with Alzheimer's Disease. Like everyone I had to learn the hard way by trial and error for 6 years to mitigate tremendous changes in behavior with my wife in the beginning of the advanced stages, unable to speak.”

Uncover the secrets in 62 Tips For Caregivers Of Alzheimer´s To Delay Shutdown to help manage the behavioral changes of a loved one with much needed guidance, support and hope to those navigating the loneliest journey of their lives.

3.5 stars

The author wrote a diary as he was caregiver for his wife of 43 years when she was diagnosed with Alzheimer’s. That diary became this book (it’s more about the length of a novella).

I am rating this good. It is hard to criticize such a personal story like this, but I only rate it as “low” as I am because there was a lot of repetition (like you would find in a diary, really). There were a few spelling and grammatical errors, as well.

But really, it’s a heartwarming story of a man’s incredible love for his wife as he tries to stop her mind from shutting down. He talks about all their daily activities and how much he tries to connect with her through these activities and in other ways. Oh, she does not speak.

I have had relatives with Alzheimer’s, but I’ve not been directly involved with them as they went through it, so I’ve not seen it firsthand. I hadn’t realized there were a lot of physical issues that go along with it, in addition to the mental issues. I can’t imagine how difficult this kind of caretaking would be.½

This book gave a good portrayal of what to expect when caring for someone with Alzheimer’s. It is an easy to read book and can be read easily in a few hours. I particularly enjoyed the author’s routine with his wife. This would be a good preparation tool to those newly diagnosed or their family members.

In Preventing Her Shutdown- Losing My Wife to Alzheimers, Sammie Marsalli narrates a very personal and highly valuable account of his experiences having a spouse with this form of dementia. Whereas I have a number of cases in my extended family, I feel extremely fortunate to have read Marsalli's work. He lays out in detail what might be expected for both victim and spouse in intimate detail.

The author is an American married for four decades to a Chilean wife and living in Santiago. Hence, I found it interesting that he shared some sentiments about the inadequacies of psychiatric care as I have concerning treatment in the United States:

"The doctor is really no help at all recommending therapists not really qualified or able to deal with my wife's problems such as not speaking or unable to swallow. Wooo..where am I going on this? I couldn't get any answers or direction to guide me and I really felt blind in "no man's land". After the visit to the doctor, I felt more lost and desperate than ever before. When I started to ask questions about where we were in this disease, what to expect, the only thing he said was “she is in the advanced stage” That's
all he said and gave me a recommendation of a therapist, surely knowing there isn't any professional therapy that can help at this stage."

He makes a helpful point that I will bear in mind and that is to find other people going through similar trials. Caregivers in online and in-person support groups educate and empathize. The [Chilean] Alzheimer's Association helped him greatly. He finds these various groups useful to alleviating some depression. “Loneliness is the caregiver's worst enemy,” he explains.

With respect to interacting directly with a patient, Marsalli emphasizes the value of family members maintaining direct contact with a sufferer. He points out that even if his wife cannot dialogue, she recognizes others in their voice and appearance for her to value the interactions. Numerous such acquired points of wisdom permeate the book. For some people, Chapter 16 may be the most valuable for it is there that he lists a number of do's and don't's pertinent to socializing with his wife. Chapter 31 is similarly a must read for its very important psychological savy. In other chapters, he provides a window into what a caregiver might expect. His warnings are clear, important, and concise, ranging from keeping hazardous materials locked up to vigilantly making physical contact and loving proximity a central part of the day.

Although the book is short, a reader might wish to read it in small doses. The author's style is simply so intense and hard-hitting. Nevertheless, I am very glad to have read it and expect that it will help me with my own family's future.

Intimately raw and deeply moving, "Preventing Her Shutdown" invites you into the heart-wrenching journey of a devoted husband who refuses to let Alzheimer's seize his wife. With tender vulnerability and unwavering love, he courageously navigates the harrowing twists and turns of this relentless affliction. Witness the extraordinary lengths one man will go to preserve the essence of their once vibrant love, leading readers on a poignant exploration of the human spirit and the infinite power of true companionship. Prepare to be captivated by this profound tale that will undoubtedly leave an indelible mark on your soul.

An inside look of what a typical home caregiver husband goes through in his desperate effort to keep his wife with Alzheimer's "connected". Readers will witness a hospice home caregiver´s successes and failures as she was in the beginning of the advanced stages, unable to speak.

No one has the "exact key" as to how to respond to Alzheimer's radical behavioral changes as there are no two profile behavioral changes alike, not even in the same stage of the disease. There isn't a standard set therapy to apply. Even the stages of Alzheimer's vary in their characteristics. Only your experiences can be your guide. “What works for me may not work for you.” Alzheimer's hospice care really begins in your home on the very first day of the diagnosis.

As a result, “I began to invent my own hospice therapies.” Each family is on their own as amateur hospice home caregivers with their personalized therapies because each profile is different which affects the way you react and care for this person.

Preventing Her Shutdown details activities and actions "in real time racing against the Alzheimer's clock" to keep her connected with her family, even though she couldn't speak, in his never-ending battle as her 24/7 hospice home caregiver husband.

“How do I connect with my wife and get her to connect with me”? This was always his constant desperation as her caregiver especially because she couldn't talk. “I was always afraid she would stop connecting with me, especially when I got that blank lost look in her eyes.” Described in this book are the steps taken to avoid losing that connection.

Witness in "Preventing Her Shutdown" intuitive decisions made, different therapies invented, all "in real time", constantly looking for opportunities to stimulate interaction and connect with her as this was alleviating his greatest fear of a "shutdown".

“How do we communicate?” “ How do I talk to her?” “How does she tell me what she wants or needs?” “What interaction can I create to communicate? “
What was she thinking or what were her real feelings because she couldn't say a word? Is she happy? Is she sad? “Sometimes I see a sad or lost face.” Does she know she is not well ? Does she know how she was before ? Does she remember her past ?

Readers will learn how she silently “reached out on her own'' to connect with her husband.

“Then I realized what about us, our 44 years of marriage, did she remember that past ? She recognized and knew me well but how far back? Did our marriage begin in 1979 or 2017 when she was diagnosed? I am not sure where I was in her memory or how she saw me, as her friend, husband or simply a caregiver.”

Discover in Preventing Her Shutdown how her hospice home caregiver husband, married 44 years, managed to keep his wife “connected and interactive” even though she couldn't speak.

This book is a must-read for anyone dealing with the struggles of Alzheimer's hospice home care for a loved one.

Intimately raw and deeply moving, "Preventing Her Shutdown" invites you into the heart-wrenching journey of a devoted husband who refuses to let Alzheimer's seize his wife. With tender vulnerability and unwavering love, he courageously navigates the harrowing twists and turns of this relentless affliction. Witness the extraordinary lengths one man will go to preserve the essence of their once vibrant love, leading readers on a poignant exploration of the human spirit and the infinite power of true companionship. Prepare to be captivated by this profound tale that will undoubtedly leave an indelible mark on your soul.

An inside look of what a typical home caregiver husband goes through in his desperate effort to keep his wife with Alzheimer's "connected". Readers will witness a hospice home caregiver´s successes and failures as she was in the beginning of the advanced stages, unable to speak.

No one has the "exact key" as to how to respond to Alzheimer's radical behavioral changes as there are no two profile behavioral changes alike, not even in the same stage of the disease. There isn't a standard set therapy to apply. Even the stages of Alzheimer's vary in their characteristics. Only your experiences can be your guide. “What works for me may not work for you.” Alzheimer's hospice care really begins in your home on the very first day of the diagnosis.

As a result, “I began to invent my own hospice therapies.” Each family is on their own as amateur hospice home caregivers with their personalized therapies because each profile is different which affects the way you react and care for this person.

Preventing Her Shutdown details activities and actions "in real time racing against the Alzheimer's clock" to keep her connected with her family, even though she couldn't speak, in his never-ending battle as her 24/7 hospice home caregiver husband.

“How do I connect with my wife and get her to connect with me”? This was always his constant desperation as her caregiver especially because she couldn't talk. “I was always afraid she would stop connecting with me, especially when I got that blank lost look in her eyes.” Described in this book are the steps taken to avoid losing that connection.

Witness in "Preventing Her Shutdown" intuitive decisions made, different therapies invented, all "in real time", constantly looking for opportunities to stimulate interaction and connect with her as this was alleviating his greatest fear of a "shutdown".

“How do we communicate?” “ How do I talk to her?” “How does she tell me what she wants or needs?” “What interaction can I create to communicate? “
What was she thinking or what were her real feelings because she couldn't say a word? Is she happy? Is she sad? “Sometimes I see a sad or lost face.” Does she know she is not well ? Does she know how she was before ? Does she remember her past ?

Readers will learn how she silently “reached out on her own'' to connect with her husband.

“Then I realized what about us, our 44 years of marriage, did she remember that past ? She recognized and knew me well but how far back? Did our marriage begin in 1979 or 2017 when she was diagnosed? I am not sure where I was in her memory or how she saw me, as her friend, husband or simply a caregiver.”

Discover in Preventing Her Shutdown how her hospice home caregiver husband, married 44 years, managed to keep his wife “connected and interactive” even though she couldn't speak.

This book is a must-read for anyone dealing with the struggles of Alzheimer's hospice home care for a loved one.