Paul Sinclair

The author argues for the de-institutionalisation of palliative care and the development of an alternative framework for the institutional approaches found in hospices, palliative care units and community-based palliative care services.
This book's striking message is that palliative care does not deliver on its aims to value people who are dying and make death and dying a natural part of life. The book draws from wider social science perspectives and critically and specifically applies these to palliative care and its dominant medical model. The author offers a new approach to death and loss that expands and refines modern understandings in a way that also resonates with traditional religious views concerning death. Applying Social Role Valorisation, he argues for the deinstitutionalisation of palliative care and the development of an alternative framework to the approaches found in hospices, palliative care units and community-based palliative care services. Wide-ranging recommendations advise fundamental change in the concept of palliative care, the way support and services are organised and the day-to-day practice of palliative care. "Rethinking Palliative Care" will be of interest to academics, students and practitioners in palliative care as well as those in disability, social policy, sociology, social work, religion, thanatology, nursing and other health-related fields.
Review: "This book successfully makes the connection between two networks, each with their own theoretical and practical influences. Social Role Valorization (SRV) theory has had major effects on services for people with intellectual disabilities in a number of countries, not without controversy. The world of palliative care has equally seen much theoretical and practical debate, not least when it focuses on vulnerable people and the effects of how they are perceived - the heart of SRV. The book's challenge to current practice in palliative care, calling, with the aid of SRV theory, for a 're-think' of basic assumptions and influences, is both timely and well laid out. It should be read by academics and practitioners in both the SRV and palliative care worlds." Dr David Race, Senior Lecturer, Salford University and author of 'Social Role Valorization and the English Experience'.… (mehr)